Parent Survey |
PLEASE HELP US PLAN NEXT STEPS IN RESEARCH!!
Dr. Nicole Tartaglia at Children’s Hospital Colorado and Dr. Judy Ross at Thomas Jefferson University are pediatric researchers with a special interest in research that helps individuals and families affected by X&Y chromosome variations. We are interested in feedback from parents / caregivers of children with X&Y variations and adolescents/adults with X&Y variations in order to plan a research program with goals and outcomes that are important to you and your child.
Answering the multiple-choice questions will take 5-10 minutes, but feel free to spend more time writing in responses if you wish.
All responses are confidential – your name / contact information is not included.