How experience frames donor-conceived people's desires about their own family building options |
You are being asked to be in this research study conducted by the University of Colorado because you have been conceived via donor gametes and are a member of the Donor Sibling Registry (DSR).
Why is this study being done?
This study is designed to learn more about family-building among a group of people that were conceived via donor gametes.
What happens if I join this study?
If you join the study, you will take a brief survey consisting of 31 questions that will gather information regarding your family dynamics during childhood, your relationship with the donor and/or half-siblings, and your opinions surrounding conception via donor insemination. The survey will also inquire about your willingness to use donor gametes if unable to conceive spontaneously for whatever reason and your willingness to donate gametes to others.
What are the possible discomforts or risks?
Possible discomforts or risks include uncertainty or discomfort while answering questions regarding your personal and donor-conceived history. There may be risks the researchers have not thought of.
Every effort will be made to protect your privacy and confidentiality by collecting data into a secure, password-protected database only accessible by designated study investigators using anonymized and de-identified data.
What are the possible benefits of the study?
This study is not designed to benefit you directly. However, at the completion of the survey, you will have the option to enter a drawing for one of five $20 Amazon gift cards.
Additionally, the information from this study will help clinicians, educators, and psychologists better understand the emotional impact on patients who have been conceived using donor gametes, and better counsel those who are considering using donor gametes to achieve their goal of parenthood and the impact that it may have on their potential offspring.
The data we collect will be used for this study but may also be important for future research. Your data may be used for future research or distributed to other researchers for future study without additional consent if information that identifies you is removed from the data.
Is my participation voluntary?
You have a choice about being in this study. You do not have to be in this study if you do not want to be.
Who do I call if I have questions?
The researcher carrying out this study is Dr. Cassandra Roeca, an Assistant Professor at the University of Colorado School of Medicine. If you have any questions, you may contact Dr. Roeca at 303-724-8089.
You may have questions about your rights as someone in this study. If you have questions, you can call COMIRB (the responsible Institutional Review Board) at (303) 724-1055.
By clicking “submit survey”, you are agreeing to participate in this research study.
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